Moyamoya Disease Awareness Day is May 6, 2026
May 6 is Moyamoya Disease Awareness Day and Credit Unions Kids at Heart®, its Participating Credit Unions, and Corporate Sponsors have organized advocacy initiatives and observances in local communities.
Moyamoya is a rare and progressive neurological disease in which the blood vessels that supply blood to the brain narrow, restricting blood flow. If left untreated, this dangerous disease can cause life-threatening strokes in children and adults, resulting in long-term, debilitating impairments.
Early diagnosis and treatment are critical. On May 6, 2026, help us educate the public and the medical community about this disease. Wear blue, participate in the events listed below, print out this fact sheet provided by Boston Children's Hospital, global leaders in the study of this disease.
Local Events and Activities
(see additional updates as we get closer to the date)
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Bridge and Municipal Building Lightings: To be determined
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Boston Children’s Hospital Lights Up in Blue: The main entrance of Boston Children’s Hospital at 300 Longwood Avenue, Boston, will light up in blue and signs of support will greet the medical teams, patients, and their families in the Moyamoya Program facilities on the 6th floor.
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Credit Union Promotions and Fundraising Challenges: Credit Unions Kids at Heart Participating Credit Unions and Corporate Sponsors will raise awareness with their employees, members, and customers in various ways, including, but not limited to, fundraising challenges, sharing educational resources online and on social media, distributing informational flyers, and more.
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98.5 The Sports Hub Radio Spots: Longtime Credit Unions Kids at Heart media partner 98.5 The Sports Hub will run public awareness campaign spots all day.
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Workplace Observances: Businesses throughout Massachusetts, including Credit Unions Kids at Heart Participating Credit Unions and Corporate Sponsors, will recognize the day in various ways, including, but not limited to, fundraising challenges, wearing light blue clothing, sharing educational resources, and more.
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Annual Boston Children's Hospital Moyamoya Disease Symposium: To be determined
Show your Support
To add your event or observance to our list, or to share your pictures from the day, please contact us at cukidsatheart@eascorp.org.